WASHINGTON, D.C. & ST LOUIS--(BUSINESS WIRE)--Patients Rising – a non-profit patient advocacy organization – announces a media briefing to detail the potential for serious risks to patients and the economy from so-called “value-frameworks” that would limit spending on new and innovative treatments for serious diseases, including multiple myeloma and other cancers.
The briefing will take place at 10 a.m. CDT/11 a.m. EDT, Tuesday, May 24, in the Landmark-1 room at the Marriott St. Louis Grand Hotel, 800 Washington Avenue, St Louis. MO. The briefing will also be streamed online to enable national media participation at www.patientsrising.org/STL2016. The news briefing will be co-hosted by The Alliance for the Adoption of Innovations in Medicine (Aimed Alliance), and the Center for Medicine in the Public Interest (CMPI)
The national media briefing will take place in advance of a public forum May 26 convened by The Institute for Clinical and Economic Research (ICER) and its Midwest affiliate, Comparative Effectiveness Public Advisory Council (CEPAC) to promote their own value benchmarks for multiple myeloma with plans for future diseases including multiple sclerosis and lung cancer in the near future.
Patients Rising and its panel of experts will release new data that demonstrate that the ICER/CEPAC proposals could result in healthcare rationing, and turn back the clock for patients and physicians.
Featured speakers at the briefing will include
- Jonathan Wilcox, co-founder and policy director of Patients Rising.
- Stacey L. Worthy, Esq., director of public policy at the Aimed Alliance, a not-for-profit organization that promotes patient access to the latest evidence-based treatments and technologies.
- Healthcare economist Robert Goldberg, Ph.D., co-founder and vice president of CMPI, a not-for-profit organization that promotes innovative solutions that extend life and make health care more affordable, preventable and patient-centered.
- Two Missouri myeloma patients who understand the full value of their therapies to their lives and livelihoods.
Both Stacey Worthy and Robert Goldberg will issue white papers challenging the premise of these value-frameworks and proposing alternatives that manage costs without limiting care.
